25 December 2020

How Dawa Founded Bhutan Stroke Foundation

Dawa Tshering heard of stroke for the first time when his 32 years young wife Rinchen Pelmo collapsed on the ground and was rushed to the hospital in June 2019. He knew she had issues with her blood pressure but he has never known the fatality of it until it struck. It caught him completely off guard. Rinchen was on life support in the ICU. Doctors didn't give him any false hope. They told him on the face to be prepared for the worst. 

Dawa Tshering and Rinchen Pelmo before their lives changed

His ignorance of stroke helped him shield against the harshness of reality. He didn't give up. His wife was in deep sleep for over a week. He has done rituals of every kind. He went to every influential friend he had around to get a referral to India. But he was told that there was no use taking her out. Gradually he began to realize how bad it was. He was told by everyone who knew the disease that she will not wake up. 

He went to a researcher friend seeking any information he could gather on stroke in Bhutan. He was given a handful, mostly articles and social media post by some Dr Tashi Tenzin. He managed to get connected to the doctor. Over the phone, he asked in desperation, "Doctor, tell me more about stroke."

Dr Tashi invited him over after hearing how earnestly he wanted to know more. He said, "You are the first person to have ever asked. Come over, let's have a chat."

Dr. Tashi Tenzin, the Guide
Photo Courtesy: Friends of Bhutan Association, Austria

By the third week, he managed to get his wife to blink her eyes in response when we ask her questions. On the 23rd day, he surprised everyone when he took her home and began the long ordeal of nursing her. Within the next few months, he left his job with Tarayana Foundation and dedicated fulltime on her. He was given the option to take a long leave if he wished but he opted to resign because he needed his provident fund to treat his wife. 

He regrettably recollects that despite free healthcare in Bhutan, he emptied his pocket on his wife's treatment; not on surgeries or medicines but on rituals. He went to every odd place any fool recommended and conducted every damn rimdro that came out. He shared that he could have treated her faster had he not desperately wasted his time and money on strange rituals. He declared that it was physiotherapy that put her back on her feet, which was absolutely free of cost. 

He would strap her to the car seat and drive her around knowing she would be so sick of staring at the ceiling all day long. He would carry her on his back like a child and go to all the places they would have gone if she were fine. He said going out helped both him and his wife. 

In less than a year, he succeeded in getting his wife, whom doctors feared won't wake up, out of her bed and make her walk on her own. She is still struggling to relearn everything, starting with speaking and eating. Knowing her love for farming, Dawa has helped setup her mushroom farm and vegetable garden. This has helped her wake up every morning with excitement and looking forward to the day.

Rinchen Watering Her Plants

Looking back at the experience he lived since his wife fell ill and watching her relearning how to do things, he felt that if he knew as much about the stroke he could have done anything to prevent that in his wife. His success at getting his wife walk on her feet is another experience, and now dealing with her disability and keeping her meaningfully occupied are things that he wanted to share with others. Having faced with so much at the prime age, Dawa says that the true battle was fought on two fronts; one with the illness and other with depression, and he hopes to be able to create much-needed awareness among the stroke patients and their families. 

Rinchen in her Mushroom Shed

Dr Tashi Tenzin with whom he had kept in constant touch shared with him how important it was for him to create a formal forum to share such stories to create awareness. As a doctor, he had said that he would love to do it but his hands are full within the four walls of the hospital. The doctor wanted Dawa to be the one to go beyond the hospital to reach out to the people. Thus, Bhutan Stroke Foundation was established. 

Personally for myself, having run to Bajo hospital carrying my mother inlaw in my arms and watch her dies a few days later in Thimphu hospital, and having watched the doctors pull the plug on my brother-in-law who was declared braindead, I have always felt the need for a stroke care organization. An organization that will create awareness to prevent stroke (before), help build efforts in timely treatment toward recovery (during) and create means for the patients to cope with life after stroke through meaningful engagements (after). 

Meeting Dawa Tshering in Punakha

When I met Dawa Tshering in Punakha, introducing his Foundation during the CSO retreat I felt like my prayers were being answered. As he spoke about his wife I couldn't see him well through my teary eyes, I knew he was destined to do this. Having hit the hardest, he has the motivation and determination to take this forward like no other. He says he wants to strive for stroke-free Bhutan, where no one has to suffer like his wife, like him and like his two children.

Every day, JDWNR Hospital alone is said to receives 2-3 stroke cases. Globally 17 million cases are reported annually, out of which 6 million dies and 5 million are left with a disability. 

8 comments:

  1. Very touching story behind the foundation. I could only wish swift recovery for his lovely wife and best wishes to Dawa sir in leading the Foundation. All the best Dawa sir.

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  2. Very sad to hear the unfortunate things happened around you la Dawa Sir. Simultaneously its very great to hear that your hardwork and prayers are heard leading to set up an foundation thats going to benefit our people in the country, if not the whole world la. Great work and Good luck la. Wish you with loads of success in your endeavour la. Kadrinche la.

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  3. deeply touched by your story & inspired by your level of determination to bring your wife back to her life. This is an epic modern day story of love & care between couple. I’m deeply humbled by passion & motivation in running this foundation. Best wishes ahead with both your wife & your foundation.

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  4. Very sad to know about your wife situation but I am also stroked patient who has suffered at a every young age 29 and still under life long medication and slightly disability.

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  5. Well written and well narrated. It's motivational as well as emotional. Just one comment, please never say you have wasted your money on rituals/rimdo. The blessing or benefits are not immediate and it's inconspicuous. I guess you are already blessed as you can take your wife back home, waking from ICU, and regained your hope after doctor expected the worst. You will be blessed anyway if you have faith. I agree some strange rituals as you mentioned are not advisable.

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  6. Kadrinecha la lopon Chablop Pasu for bringing this to public to public. It's not all about me and my wife. It's about the discovered stroke burden that people should know about. As you and i know there are thousand (at least 3-4 patients at JDWNRH itself) suffering from stork daily but this topic is being left or unknown to general public and this will penetrate through hearts of many so that they will know about the stroke burden at least and be prepare.

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  7. Gone through until it concludes. Seems it is an outcome based on trouble faced in reality which never suspect of fake. It's quite motivational and inspiring

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